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COVID-19
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niepełnosprawność
rodzina
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Zalewska, A., & Gałczyk, M. (2022). Children with disabilities and their families during the COVID-19 pandemic - literature review. Kwartalnik Naukowy Fides Et Ratio, 49(1), 171-176. https://doi.org/10.34766/fetr.v49i1.1055
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Abstrakt
The difficult situation in which the whole society suddenly found itself due to the SARS-CoV-2 virus pandemic causing the COVID-19 disease, has disintegrated everyday life, arousing fear and carrying many negative consequences. Children with disabilities and their families are in a difficult position, for whom the pandemic crisis also overlaps with other problems related to disability. The main purpose of the article is to present the actual situation of children with disabilities and their families during the COVID-19 pandemic. Based on the review of the current literature based on the EBM (Evidence-Based Medicine) paradigm, the characteristics of the functioning and selected problems of this group, as well as the negative effects of the pandemic affecting it, have been presented.
Bibliografia
1. Aishworiya, R., Kang, Y.Q. (2021). Including Children with Developmental Disabilities in the Equation During this COVID-19 Pandemic. Journal of Autism and Developmental Disorders, 51 (6), 2155–2158, https://doi.org/10.1007/s10803-020-04670-6.
2. Armitage, R., Nellums, L. (2020). The COVID-19 response must be disability inclusive. The Lancet Public Health, 5 (5), e.257, https://doi.org/10.1016/S2468-2667(20)30076-1.
3. Bentenuto, A., Mazzoni, N., Giannotti, M., Venuti, P., de Falco, S. (2021) Psychological impact of Covid-19 pandemic in Italian families of children with neurodevelopmental disorders. Research in Developmental Disabilities, 109, https://doi.org/10.1016/j.ridd.2020.103840
4. Buchnat, M., Wojciechowska, A. (2020). Rodzeństwo osób z niepełnosprawnością w sytuacji kryzysowej wywołanej pandemią wirusa COVID-19. Studia Edukacyjne, 57, 33-46, https://doi.org/10.14746/se.2020.57.3.
5. Ciciurkaite, G., Marquez-Velarde, G., Brown, R.L. (2021) Stressors associated with the COVID-19 pandemic, disability, and mental health: Considerations from the Intermountain West. Stress Health, 12, 10.1002/smi.3091, https://doi.org/10.1002/smi.3091.
6. Clair, R., Gordon, M., Kroon, M., Reilly C. (2021) The effects of social isolation on well-being and life satisfaction during pandemic. Humanities and Social Sciences Communications, 8 (2), https://doi.org/10.1057/s41599-021-00710-3.
7. Colizzi, M., Sironi, E., Antonini, F., Ciceri, M., Bovo, C., Zoccante, L. (2020). Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey. Brain Sciences, 10 (6), 341, https://doi.org/10.3390/brainsci10060341.
8. Dhiman, S., Sahu, P.K., Reed, W.R., Ganesh, G.S., Goyal, R.K., Jain, S. (2020) Impact of COVID-19 outbreak on mental health and perceived strain among caregivers tending children with special needs. Research in Developmental Disabilities, 2020 https://doi.org/10.1016/j.ridd.2020.103790
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10. Dong, X., Cao, Y.Y., Lu, X.X., Zhang, J.J., Du, H., Yan, Y.Q., Akdis, CA., Gao, Y.D. (2020). Eleven faces of coronavirus disease 2019. Allergy, 75 (7), 1699–1709, https://doi.org/10.1111/all.14289.
11. Doroszuk, J. (2020). Rodzina dziecka z niepełnosprawnością podczas pandemii Covid-19 – matczyne rekonstrukcje. Niepełnosprawność- Dyskursy Pedagogiki Specjalnej, (40), 9-21.
12. Dunst, C.J., Trivette, C.M., Hamby, D.W. (2008). Research Synthesis and Meta-Analysis of Studies of Family-Centered Practices. Winterberry Press Monograph Series. Asheville: Winterberry Press.
13. Elbay, R.Y., Kurtulmuş, A., Arpacıoğlu, S., Karadere, E. (2020) Depression, anxiety, stress levels of physicians and associated factors in Covid-19 pandemics. Psychiatry Research, 290, 113130, https://doi.org/10.1016/j.psychres.2020.113130.
14. Eshraghi, A.A., Li, C., Alessandri, M., Messinger, D.S., Eshraghi, R.S., Mittal, R., Armstrong, F.D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. The Lancet Psychiatry, 7 (6), 481–483, https://doi.org/10.1016/S2215-0366(20)30197-8
15. Glac, I. (2020). Formy wsparcia uczniów ze specjalnymi potrzebami edukacyjnymi w czasach edukacji zdalnej. (w:) N. Pikuła, M. Grewiński, E. Zdebska, W. Glac (red.), Wyzwania dla polityki społecznej w kontekście pandemii koronawirusa, 151–173, Kraków: Wydawnictwo „Scriptum”.
16. Grumi, S., Provenzi, L., Gardani, A., Aramini, V., Dargenio, E., Naboni, C., Vacchini, V., Borgatti, R., Engaging with Families through On-line Rehabilitation for Children during the Emergency (EnFORCE) Group (2021) Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities, Disability and Rehabilitation, 43 (1), 27-32, https://doi.org/10.1080/09638288.2020.1842520.
17. Heitzman, J. (2020) Impact of COVID-19 pandemic on mental health. Psychiatria Polska, 54 (2), 187-198, : https://doi.org/10.12740/PP/120373.
18. Kocejko M. (2021) Ochrona dzieci przed krzywdzeniem w czasie pandemii COVID-19. Dziecko krzywdzone. Teoria, badania, praktyka, 20 (2), 76-91.
19. Kumar, A., Nayar, K.R. (2021) COVID 19 and its mental health consequences, Journal of Mental Health, 30 (1), 1-2, https://doi.org/10.1080/09638237.2020.1757052.
20. Lewandowska, P. (2020). Dostępność edukacji zdalnej dla uczniów z niepełnosprawnością słuchową w klasach IV–VIII. (w:) E. Domagała-Zyśk (red.), Zdalne uczenie się i nauczanie a specjalne potrzeby edukacyjne. Z doświadczeń pandemii COVID-19, 11–41, Lublin: Wydawnictwo Episteme.
21. Lund, E.M. (2020). Interpersonal violence against people with disabilities: Additional concerns and considerations in the COVID-19 pandemic. Rehabilitation Psychology, 65 (3), 199–205, https://doi.org/10.1037/rep0000347.
22. Masi, A., Mendoza Diaz, A., Tully, L., Azim, S.I., Woolfenden, S., Efron, D., Eapen, V (2021). Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents. Journal of Paediatrics and Child Health, 57 (5), 631-636, https://doi.org/10.1111/jpc.15285.
23. Patel, K. (2020) Mental health implications of COVID-19 on children with disabilities. Asian Journal of Psychiatry, 54 :102273, https://doi.org/10.1016/j.ajp.2020.102273.
24. Pinkas, J., Jankowski, M., Szumowski, Ł., Lusawa, A., Zgliczyński, W., Raciborski, F., Wierzba, W., Gujski, M. (2020). Public health interventions to mitigate early spread of SARS-CoV-2 in Poland. Medical Science Monitor: International Medical Journal of Experimental and Clinical Research, 13 (26), 1–7, https://doi.org/10.12659/MSM.935952.
25. Pisula, E. (2007) Rodzice i rodzeństwo z zaburzeniami rozwoju, Warszawa: Uniwersytet Warszawski.
26. Prata, J., Lawson, W., Coelho, R. (2019) Stress factors in parents of children on the autism spectrum: an integrative model approach. International Journal of Clinical Neurosciences and Mental Health, 6, 2, https://doi.org/10.21035/ijcnmh.2019.6.2.
27. Rozporządzenie Ministra Edukacji Narodowej z dnia 11 marca 2020 r. w sprawie czasowego ograniczenia funkcjonowania jednostek systemu oświaty w związku z zapobieganiem, przeciwdziałaniem i zwalczaniem COVID-19, Dz.U. 2020 poz. 410. https://isap.sejm.gov.pl/isap.nsf/DocDetails.xsp?id=WDU20200000410
28. Rozporządzenie Rady Ministrów z dnia 31 marca 2020 r. w sprawie ustanowienia określonych ograniczeń, nakazów i zakazów w związku z wystąpieniem stanu epidemii, Dz.U. 2020 poz. 566 https://isap.sejm.gov.pl/isap.nsf/DocDetails.xsp?id=WDU20200000566
29. Shader, R.I. (2020) COVID-19 and Depression. Clinical Therapeutics, 42 (6), 962-963, https://doi.org/10.1016/j.clinthera.2020.04.010.
30. Toseeb, U., Asbury, K., Code, A., Fox, L., Deniz, E. (2020). Supporting Families with Children with Special Educational Needs and Disabilities During COVID-19. https://doi.org/10.31234/osf.io/tm69k.
31. Wierzbiński, P. (2020). Stress in the age of the COVID-19 pandemic from a subjective perspective of a psychiatrist. Psychiatria i Psychologia Kliniczna, 20 (2), 98–101, https://doi.org/10.15557/PiPK.2020.0013.
2. Armitage, R., Nellums, L. (2020). The COVID-19 response must be disability inclusive. The Lancet Public Health, 5 (5), e.257, https://doi.org/10.1016/S2468-2667(20)30076-1.
3. Bentenuto, A., Mazzoni, N., Giannotti, M., Venuti, P., de Falco, S. (2021) Psychological impact of Covid-19 pandemic in Italian families of children with neurodevelopmental disorders. Research in Developmental Disabilities, 109, https://doi.org/10.1016/j.ridd.2020.103840
4. Buchnat, M., Wojciechowska, A. (2020). Rodzeństwo osób z niepełnosprawnością w sytuacji kryzysowej wywołanej pandemią wirusa COVID-19. Studia Edukacyjne, 57, 33-46, https://doi.org/10.14746/se.2020.57.3.
5. Ciciurkaite, G., Marquez-Velarde, G., Brown, R.L. (2021) Stressors associated with the COVID-19 pandemic, disability, and mental health: Considerations from the Intermountain West. Stress Health, 12, 10.1002/smi.3091, https://doi.org/10.1002/smi.3091.
6. Clair, R., Gordon, M., Kroon, M., Reilly C. (2021) The effects of social isolation on well-being and life satisfaction during pandemic. Humanities and Social Sciences Communications, 8 (2), https://doi.org/10.1057/s41599-021-00710-3.
7. Colizzi, M., Sironi, E., Antonini, F., Ciceri, M., Bovo, C., Zoccante, L. (2020). Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey. Brain Sciences, 10 (6), 341, https://doi.org/10.3390/brainsci10060341.
8. Dhiman, S., Sahu, P.K., Reed, W.R., Ganesh, G.S., Goyal, R.K., Jain, S. (2020) Impact of COVID-19 outbreak on mental health and perceived strain among caregivers tending children with special needs. Research in Developmental Disabilities, 2020 https://doi.org/10.1016/j.ridd.2020.103790
9. Dołęga, Z. (2010) System rodzinny a samotność dzieci i młodzieży, [w:] J. Cichla, J. Herberger, B. Skwarek (red.) Kultura pedagogiczna współczesnej rodziny, 205-217, Głogów.
10. Dong, X., Cao, Y.Y., Lu, X.X., Zhang, J.J., Du, H., Yan, Y.Q., Akdis, CA., Gao, Y.D. (2020). Eleven faces of coronavirus disease 2019. Allergy, 75 (7), 1699–1709, https://doi.org/10.1111/all.14289.
11. Doroszuk, J. (2020). Rodzina dziecka z niepełnosprawnością podczas pandemii Covid-19 – matczyne rekonstrukcje. Niepełnosprawność- Dyskursy Pedagogiki Specjalnej, (40), 9-21.
12. Dunst, C.J., Trivette, C.M., Hamby, D.W. (2008). Research Synthesis and Meta-Analysis of Studies of Family-Centered Practices. Winterberry Press Monograph Series. Asheville: Winterberry Press.
13. Elbay, R.Y., Kurtulmuş, A., Arpacıoğlu, S., Karadere, E. (2020) Depression, anxiety, stress levels of physicians and associated factors in Covid-19 pandemics. Psychiatry Research, 290, 113130, https://doi.org/10.1016/j.psychres.2020.113130.
14. Eshraghi, A.A., Li, C., Alessandri, M., Messinger, D.S., Eshraghi, R.S., Mittal, R., Armstrong, F.D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. The Lancet Psychiatry, 7 (6), 481–483, https://doi.org/10.1016/S2215-0366(20)30197-8
15. Glac, I. (2020). Formy wsparcia uczniów ze specjalnymi potrzebami edukacyjnymi w czasach edukacji zdalnej. (w:) N. Pikuła, M. Grewiński, E. Zdebska, W. Glac (red.), Wyzwania dla polityki społecznej w kontekście pandemii koronawirusa, 151–173, Kraków: Wydawnictwo „Scriptum”.
16. Grumi, S., Provenzi, L., Gardani, A., Aramini, V., Dargenio, E., Naboni, C., Vacchini, V., Borgatti, R., Engaging with Families through On-line Rehabilitation for Children during the Emergency (EnFORCE) Group (2021) Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities, Disability and Rehabilitation, 43 (1), 27-32, https://doi.org/10.1080/09638288.2020.1842520.
17. Heitzman, J. (2020) Impact of COVID-19 pandemic on mental health. Psychiatria Polska, 54 (2), 187-198, : https://doi.org/10.12740/PP/120373.
18. Kocejko M. (2021) Ochrona dzieci przed krzywdzeniem w czasie pandemii COVID-19. Dziecko krzywdzone. Teoria, badania, praktyka, 20 (2), 76-91.
19. Kumar, A., Nayar, K.R. (2021) COVID 19 and its mental health consequences, Journal of Mental Health, 30 (1), 1-2, https://doi.org/10.1080/09638237.2020.1757052.
20. Lewandowska, P. (2020). Dostępność edukacji zdalnej dla uczniów z niepełnosprawnością słuchową w klasach IV–VIII. (w:) E. Domagała-Zyśk (red.), Zdalne uczenie się i nauczanie a specjalne potrzeby edukacyjne. Z doświadczeń pandemii COVID-19, 11–41, Lublin: Wydawnictwo Episteme.
21. Lund, E.M. (2020). Interpersonal violence against people with disabilities: Additional concerns and considerations in the COVID-19 pandemic. Rehabilitation Psychology, 65 (3), 199–205, https://doi.org/10.1037/rep0000347.
22. Masi, A., Mendoza Diaz, A., Tully, L., Azim, S.I., Woolfenden, S., Efron, D., Eapen, V (2021). Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents. Journal of Paediatrics and Child Health, 57 (5), 631-636, https://doi.org/10.1111/jpc.15285.
23. Patel, K. (2020) Mental health implications of COVID-19 on children with disabilities. Asian Journal of Psychiatry, 54 :102273, https://doi.org/10.1016/j.ajp.2020.102273.
24. Pinkas, J., Jankowski, M., Szumowski, Ł., Lusawa, A., Zgliczyński, W., Raciborski, F., Wierzba, W., Gujski, M. (2020). Public health interventions to mitigate early spread of SARS-CoV-2 in Poland. Medical Science Monitor: International Medical Journal of Experimental and Clinical Research, 13 (26), 1–7, https://doi.org/10.12659/MSM.935952.
25. Pisula, E. (2007) Rodzice i rodzeństwo z zaburzeniami rozwoju, Warszawa: Uniwersytet Warszawski.
26. Prata, J., Lawson, W., Coelho, R. (2019) Stress factors in parents of children on the autism spectrum: an integrative model approach. International Journal of Clinical Neurosciences and Mental Health, 6, 2, https://doi.org/10.21035/ijcnmh.2019.6.2.
27. Rozporządzenie Ministra Edukacji Narodowej z dnia 11 marca 2020 r. w sprawie czasowego ograniczenia funkcjonowania jednostek systemu oświaty w związku z zapobieganiem, przeciwdziałaniem i zwalczaniem COVID-19, Dz.U. 2020 poz. 410. https://isap.sejm.gov.pl/isap.nsf/DocDetails.xsp?id=WDU20200000410
28. Rozporządzenie Rady Ministrów z dnia 31 marca 2020 r. w sprawie ustanowienia określonych ograniczeń, nakazów i zakazów w związku z wystąpieniem stanu epidemii, Dz.U. 2020 poz. 566 https://isap.sejm.gov.pl/isap.nsf/DocDetails.xsp?id=WDU20200000566
29. Shader, R.I. (2020) COVID-19 and Depression. Clinical Therapeutics, 42 (6), 962-963, https://doi.org/10.1016/j.clinthera.2020.04.010.
30. Toseeb, U., Asbury, K., Code, A., Fox, L., Deniz, E. (2020). Supporting Families with Children with Special Educational Needs and Disabilities During COVID-19. https://doi.org/10.31234/osf.io/tm69k.
31. Wierzbiński, P. (2020). Stress in the age of the COVID-19 pandemic from a subjective perspective of a psychiatrist. Psychiatria i Psychologia Kliniczna, 20 (2), 98–101, https://doi.org/10.15557/PiPK.2020.0013.
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