A child with disability as a value - motherhood in a noetic perspective
pdf (English)

Słowa kluczowe

niepełnosprawność intelektualna
macierzyństwo
sens życia
cierpienie
noo-psychoteoria
logoterapia

Jak cytować

Sipowicz, K., Podlecka , M., & Pietras, T. (2021). A child with disability as a value - motherhood in a noetic perspective. Kwartalnik Naukowy Fides Et Ratio, 48(4), 496-506. https://doi.org/10.34766/fetr.v48i4.971
Język / Language
Słowa kluczowe

Abstrakt

The paper attempts to embed the experience of being a mother to a child with intellectual disabilities in a noetic (spiritual) perspective of human functioning. According to the noo-psychotheoretical assumptions (Popielski, 2018) constructed on the basis of Viktor Frankl’s concept of logotherapy (2009), finding and fulfilling the meaning of life is the highest human need and a kind of metamotivation. The suffering resulting from motherhood is seen as a borderline experience, in which the existential situation so far is revalued and the meaning appears to be the acceptance of an attitude of moral heroism towards the inevitable fate.

https://doi.org/10.34766/fetr.v48i4.971
pdf (English)

Bibliografia

Antonovsky, A. (2005). Rozwikłanie tajemnicy zdrowia–jak radzić sobie ze stresem i nie zachorować, Warszawa: Instytut Psychiatrii i Neurologii.

Baker, B.L., Blacher, J., Crnic, K.A., Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays, American Journal of Mental Retardation, 107(6), 433–444.

Baker, B.L., Blacher, J., Olsson, M.B. (2005). Preschool children with and without developmental delay: behavior problems, parents optimism and well-being, Journal of Intellectual Disability Research, 49(8), 575–590.

Barłóg, K. (2017). Poczucie sensu życia rodzin z dzieckiem z niepełnosprawnością intelektualną, Kultura–Przemiany–Edukacja, V, 255-266.

Blacher, J., Neece, C.L., Paczkowski, E. (2005). Families and intellectual disability, Current Opinion in Psychiatry, 18, 507–513.

Dezelic, M.S., Ghanoum, G. (2015). Meaning-centered therapy manual. Logotherapy & existential analysis brief therapy protocol for group & individual sessions. Miami: Presence Press International.

Durà-Vilà, G., Dein, S., & Hodes, M. (2010). Children with intellectual disability: A gain not a loss: Parental beliefs and family life, Clinical Child Psychology and Psychiatry, 15(2), 171–184.

Emerson, E. (2003). Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child’s difficulties, Journal of Intellectual Disability Research, 47(45), 385-399.

Emerson, E., Einfeld, S.L. (2011). Challenging Behaviour, Cambridge: Cambridge University Press.

Frankl, V. (1984). Homo patiens, Warszawa: Instytut Wydawniczy PAX.

Frankl, V. (2009). Człowiek w poszukiwaniu sensu, Warszawa: Wydawnictwo Czarna Owca. Frankl, V. (2018). Wola sensu. Założenia i zastosowanie logoterapii, Warszawa: Wydawnictwo Czarna Owca.

Gogoi, R.R., Kumar, R., Deuri, S.P. (2016). Anxiety, depression, and quality of life in mothers of children with intellectual disability, Open Journal of Psychiatry & Allied Sciences, 8(1), 71-75.

Gray, D.E. (2006). Coping over time: The parents of children with autism, Journal of Intellectual Disability Research, 50, 970-976.

Green, S.E. (2003). “What do you mean ‘what’s wrong with her?’”: Stigma and the lives of families of children with disabilities, Social Science & Medicine, 57, 1361-1374.

Hastings, R.P., Beck, A. (2004). Practitioner review: Stress intervention for parents of children with intellectual disabilities, Journal of Child Psychology and Psychiatry, 45(8), 1338- 1349.

Hastings, R.P., Taunt, H. (2002). Positive perceptions in families of children with developmental disabilities, American Journal on Mental Retardation, 107, 116–127.

Heszen, I. (2019). Kliniczna psychologia zdrowia, (in:) L. Cierpiałkowska, H. Sęk (eds.), Psychologia kliniczna, 517-540, Warszawa: Wydawnictwo Naukowe PWN.

Heszen, I., Sęk, H. (2007). Psychologia zdrowia, Warszawa: Wydawnictwo Naukowe PWN.

Horsley, S., Oliver, C. (2013). Positive impact and its relationship to well-being in parents of children with intellectual disability: a literature review, International Journal of Developmental Disabilities, 61(1), 1–19.

Lee, J. (2013). Maternal stress, well-being, and impaired sleep in mothers of children with developmental disabilities: a literature review, Research of Developmental Disabilities, 34(11), 4255 – 4273.

Mcconnell, D., Savage, A. (2015). Stress and Resilience Among Families Caring for Children with Intellectual Disability: Expanding the Research Agenda, Current Developmental Disorders Reports, 2, 100–109.

Mcconnell, D., Savage, A., (2015). Stress and Resilience Among Families Caring for Children with Intellectual Disability: Expanding the Research Agenda, Current Developmental Disorders Reports, 2, 100–109.

Morse, R.S., Rojahn, J., Smith, A.C. (2014). Effects of behavior problems, family functioning, and family coping on parent stress in families with a child with Smith-Magenis syndrome, Journal of Developmental and Physical Disabilities, 26(4), 391–401.

Mundt, C. (2014). Jaspers Concept of “Limit Situation”: Extensions and Therapeutic Applications, (in:) T. Fuchs, T. Breyer, C. Mundt (eds.), Karl Jaspers’ Philosophy and Psychopathology, 169-178, New York: Springer.

Noor, N.M. (2003). Work-and family-related variables, work-family conflict and women’s well-being: some observations, Community, Work & Family, 6, 297-319

Oman, D., Thoresen, C.E. (2005). Do religion and spirituality influence health?, (in:) R.F. Paloutzian, C.L. Park (eds.), Handbook of the psychology of religion and spirituality, 435- 459, New York/London: The Guilford Press.

Plant, K.M., Sanders, M.R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities, Journal of Intellectual Disabilities Research, 51, 109-124.

Popielski, K. (1987). Człowiek – pytanie otwarte, Lublin: Wydawnictwo Katolickiego Uniwersytetu Lubelskiego.

Popielski, K. (1994). W kierunku psychoterapii “o ludzkim obliczu”: logoterapia i nooterapia, Roczniki Filozoficzne, XLII (4), 13-31

Popielski, K. (2008). Noetyczne jakości Życia i ich znaczenie w procesie “bycia i stawania się” egzystencji, Chowanna, 1, 9-25

Popielski, K. (2018). Noetyczny wymiar osobowości. Psychologiczna analiza poczucia sensu życia, Lublin: Institute of Biofeedback and Noo-psychosomatic.

Singer, G.H. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities, American Journal of Mental Retardation, 111(3), 155 – 169.

Singh, R. (2015). Psychological correlates of wellbeing in mothers of children with intellectual disability, Journal of Disability Studies, 1(1), 10-14.

Steger, M. F., Oishi, L. (2004). Is a life without meaning satisfying? The Journals of Gerontology: Series B, 54, 125–135.

Stelte, Ż. (2015). Poczucie sensu życia rodziców dzieci niepełnosprawnych intelektualnie, Diametros, 46, 92-110.

Tomanik, S., Harris, G. E., Hawkins, J. (2004). The relationship between behaviors exhibited by children with autism and maternal stress. Journal of Intellectual & Developmental Disability, 29, 16-26.

Totsika, V., Hastings, R.P., Emerson, E., Lancaster, G.A., Berridge, D.M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability, Journal of Child Psychology and Psychiatry, 52(1), 91-99.

Twardowski, A. (1991). Sytuacja rodzin dzieci niepełnosprawnych, (in:) I. Obuchowska (ed.), Dziecko niepełnosprawne w rodzinie, 21-26, Warszawa: WSiP.

Webber, J. (2009). Existentialism of Jean-Paul Sartre, New York /London: Routledge.

Wyczesany, J. (2012). Wybrane aspekty diagnozy i terapii osób z niepełnosprawnością intelektualną, (in): K. Bobińska, T. Pietras, P. Gałecki (eds.), Niepełnosprawność intelektualna–etiopatogeneza, epidemiologia, diagnoza, terapia, 69-92, Wrocław: Wydawnictwo Continuo.

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