Life Situation Scale for Parents of Children with Oncological Diseases – Polish adaptation
pdf

Keywords

child cancer
parental situation
psychometric evaluation
questionnaire

How to Cite

Socha, I., & Janicka, I. (2023). Life Situation Scale for Parents of Children with Oncological Diseases – Polish adaptation. Quarterly Journal Fides Et Ratio, 53(1), 62-68. https://doi.org/10.34766/fetr.v53i1.1172
Keywords

Abstract

Introduction: A child’s cancer diagnosis causes severe stress for parents throughout the treatment process. Long-term stress, an uncertain prognosis and constant disposability cause the carers of a sick child to experience adverse changes in the areas of physical and psychosocial health. Their living situation depends on the support they receive from loved ones and from medical staff. Research on the assessment of their specific living situation is gaining importance, which requires the use of an appropriate tool. Such possibilities are provided by the Life Situation Scale for Parents of children with cancer. The article presents the next steps in the adaptation of this questionnaire. Methods: A total of 112 parents of children with cancer participated in the study. Parents were in the age range 25 to 59 years (M = 38.56 years; SD =  6.71). The procedure for adapting the Life Situation Scale for Parents (LSS-P) included verification of the factor structure and assessment of the psychometric properties of the Polish version of the questionnaire. Results: Statistical analyses confirmed the good psychometric properties of the Polish adaptation of the Life Situation Scale for Parents (LSS-P). The adaptation includes 20 statements and measures 3 types of support: social, emotional and institutional i.e. received directly from the medical staff. Conclusion: Life Situation Scale for Parents of children with cancer proved to be a valid and reliable tool. The scale can be used in diagnosing the needs of parents in the process of a child’s cancer. This tool can be particularly useful in Oncology Departments, where it is important to care not only for the little patient, but also for their parents.

https://doi.org/10.34766/fetr.v53i1.1172
pdf

References

Al-Gamal, E., Long, T., Shehadeh, J. (2019). Health satisfaction and family impact of parents of children with cancer: a descriptive cross-sectional study. Scandinavian journal of caring sciences, 33(4), 815–823. https://doi.org/10.1111/scs.12677

Agbayani, C.J., Tucker, J.A., Nelson, E.L., Martinez, F., Cortes, H., Khoury, D., Kain, Z.N., Lin, C., Torno, L., Fortier, M.A. (2022). Immunological and psycho-social functioning in parents of children with cancer. Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 30(4), 3379–3388.

Baenziger, J., Hetherington, K., Wakefield, C.E., Carlson, L., McGill, B.C., Cohn, R.J., Michel, G., Sansom-Daly, U.M. (2020). Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research. Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 28(9), 4467–4476. https://doi.org/10.1007/s00520-019-05270-6

Buszman, K., Przybyła-Basista, H. (2017). Polish adaptation of multidimensional scale of perceived social support. Polish Psychological Forum, 22, 4, 581-599 https://doi.org/10.14656/PFP20170404

Carlsson, T., Kukkola, L., Ljungman, L., Hovén, E., von Essen, L. (2019). Psychological distress in parents of children treated for cancer: An exploratory study. PLOS ONE, 14(6), e0218860. https://doi.org/10.1371/journal.pone.0218860

Christen, S., Mader, L., Baenziger, J., Roser, K., Schindera, C., Tinner, E.M., Michel, G. (2019). “I wish someone had once asked me how I’m doing”: Disadvantages and support needs faced by parents of long-term childhood cancer survivors. Pediatric blood & cancer, 66(8), e27767. https://doi.org/10.1002/pbc.27767

Compas, B.E., Bemis, H., Gerhardt, C.A., Dunn, M.J., Rodriguez, E.M., Desjardins, L., Preacher, K.J., Manring, S., Vannatta, K. (2015). Mothers and fathers coping with their children’s cancer: Individual and interpersonal processes. Health psychology: official journal of the Division of Health Psychology, American Psychological Association, 34(8), 783–793. https://doi.org/10.1037/hea0000202

Didkowska, J., Wojciechowska, U., Olasek, P., Dos Santos F.C., F., Michałek, I. (2021). Cancers in Poland in 2019. Warsaw: National Cancer Registry, Maria Skłodowska-Curie National Institute of Oncology, National Research Institute, Ministry of Health.

Enskär, K., Carlsson, M., von Essen, L., Kreuger, A., Hamrin, E. (1997). Development of a tool to measure the life situation of parents of children with cancer. Quality of Life Research, 6, 248–256.

John, A., Injodey, J.I. ( 2018). The Life Situation of Parents of Children with Cancer in Kerala. Rajagiri Journal of Social Development, 1 , 57-74.

Kaiser, H. (1974). An index of factorial simplicity. Psychometrika. 39(1): 31–36, https://doi.org/10.1007/bf02291575

Klassen, A.F., Klaassen, R., Dix, D., Pritchard, S., Yanofsky, R., O’Donnell, M., Scott, A., Sung, L. (2008). Impact of caring for a child with cancer on parents’ health-related quality of life. Journal of Clinical Oncology. An American Society of Clinical Oncology, 26(36), 5884–5889. https://doi.org/10.1200/JCO.2007.15.2835

Malpert, A.V., Kimberg, C., Luxton, J., Mullins, L.L., Pui, C.H., Hudson, M.M., Krull, K.R., Brinkman, T.M. (2015). Emotional distress in parents of long-term survivors of childhood acute lymphoblastic leukemia. Psycho-oncology, 24(9), 1116–1123. https://doi.org/10.1002/pon.3732

Northouse, L., Williams, A.L., Given, B., McCorkle, R. (2012). Psycho-social care for family caregivers of patients with cancer. Journal of clinical oncology: official journal of the American Society of Clinical Oncology, 30(11), 1227–1234. https://doi.org/10.1200/JCO.2011.39.5798

Peikert, M.L., Inhestern, L., Krauth, K.A., Escherich, G., Rutkowski, S., Kandels, D., Bergelt, C. (2020). Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany. BMJ open, 10(3), e033730. https://doi.org/10.1136/bmjopen-2019-033730

Phipps, S., Long, A., Willard, V.W., Okado, Y., Hudson, M., Huang, Q., Zhang, H., Noll, R. (2015). Parents of Children With Cancer: At-Risk or Resilient?. Journal of Pediatric Psychology, 40(9), 914–925. https://doi.org/10.1093/jpepsy/jsv047

Roser, K., Erdmann, F., Michel, G., Winther, J.F., Mader, L. (2019). The impact of childhood cancer on parents’ socioeconomic situation-A systematic review. Psycho-oncology, 28(6), 1207–1226. https://doi.org/10.1002/pon.5088

Salvador, Á., Crespo, C., Roberto, M.S., Barros, L. (2020). Do parents of children with cancer want to participate in treatment decision-making? Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 28(3), 1059–1067. https://doi.org/10.1007/s00520-019-04909-8

Sisk, B.A., Kang, T.I., Mack, J.W. (2020). The evolution of regret: decision-making for parents of children with cancer. Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 28(3), 1215–1222. https://doi.org/10.1007/s00520-019-04933-8

Thompson, B. (2008). Exploratory and Confirmatory Factor Analysis. Understanding Concepts and Applications. Third Printing. Washington DC: American Psychological Association.

Van Schoors, M., De Mol, J., Morren, H., Verhofstadt, L.L., Goubert, L., Van Parys, H. (2018). Parents’ Perspectives of Changes Within the Family Functioning After a Pediatric Cancer Diagnosis: A Multi Family Member Interview Analysis. Qualitative Health Research, 28(8), 1229–1241. https://doi.org/10.1177/1049732317753587

Vrijmoet-Wiersma, C.M., van Klink, J.M., Kolk, A.M., Koopman, H.M., Ball, L.M., Egeler,R.M. (2008). Assessment of parental psychological stress in pediatric cancer: a review. Journal of Pediatric Psychology, 33(7), 694–706. https://doi.org/10.1093/jpepsy/jsn007

Wakefield, C.E., McLoone, J.K., Butow, P., Lenthen, K., Cohn, R.J. (2011). Parental adjustment to the completion of their child’s cancer treatment. Pediatric blood & cancer, 56(4), 524–531. https://doi.org/10.1002/pbc.22725

Wiener, L., Battles, H., Zadeh, S., Pelletier, W., Arruda-Colli, M., Muriel, A.C. (2017). The perceived influence of childhood cancer on the parents’ relationship. Psycho-oncology, 26(12), 2109–2117. https://doi.org/10.1002/pon.4313

Zavagli, V., Miglietta, E., Varani, S., Pannuti, R., Brighetti, G., Pannuti, F. (2016). Associations between caregiving worries and psycho-physical well-being. An investigation on home-cared cancer patients family caregivers. Supportive Care in Cancer, 24, 857–863. https://doi.org/10.1007/s00520-015-2854-y

Zavagli, V., Varani, S., Samolsky-Dekel, A.R., Brighetti, G., Pannuti, F. (2012). Worry as a risk factor for mental and somatic diseases. A research on home-cared cancer patients family caregivers. Giornale italiano di medicina del lavoro ed ergonomia, 34(2), B17–B22.

Downloads

Download data is not yet available.