Keywords
parents
children with leukemia
narratives
How to Cite
Abstract
Affectionate communication is conscious and overt displays of affection like love, fondness, and positive regard to each other (Floyd, 1997; Greszta, 2000a). The benefits of affectionate communication on both physical and mental levels are emphasized in the literature. Affection exchange is particularly important in difficult situations. Especially essential when a child has leukemia. Diagnosis of cancer is a difficult situation for both parents and young patients. Stress, anxiety and tension can significantly disturb the process of affectionate communication in a parent-child relationship. The aim of the study, the results of which has presented in this article, was to answer whether the affection exchange between parents and children with acute lymphoblastic leukemia (ALL) differs from the affection exchange in families of healthy children, and if so - what is the difference. The study was conducted on the group of 134 children (67 children with ALL and 67 healthy children), including 54 girls and 80 boys (27 girls and 40 boys in each group), aged 6-16 years. The narrative method, by E.Greszta, was used to measure the number, cause and feelings of affectionate communication between parents and children. The obtained results revealed statistically significant differences in the distribution of the number of manifestations of non-verbal affectionate communication and their average number. Children with ALL obtain significantly lower results, among others in the field of showing non-verbal affectionate communication to express love towards the mother. However, for both groups, the most common reason for initiating affectionate communication with both parents was the need for support.References
Afifi, T. D., Merrill, A. F. i Davis, S. (2016). The theory of resilience and relational load. Personal Relationships, 23, 663-683.
Aldridge, A. A. i Roesch, S. C. (2007). Coping and adjustment in children with cancer: A meta-analytic study. Journal of Behavioral Medicine, 30, 115-129.
Allmond, B. W., Buckman, W. i Gofman, H. F. (1979). The family is the patient: An approach to behavioral pediatrics for the clinician. London: The C. V. Mosby Company.
Arabiat, D. H., Alqaissi, N. M. i Hamdan‐Mansour, A. M. (2011). Children's knowledge of cancer diagnosis and treatment: Jordanian mothers' perceptions and satisfaction with the process. International Nursing Review, 58, 443-449.
Barakat, L. P., Galtieri, L. R., Szalda, D. i Schwartz, L. A. (2016). Assessing the psychosocial needs and program preferences of adolescents and young adults with cancer. Supportive Care in Cancer, 24, 823-832.
Barakat, L. P., Kazak, A. E., Gallagher, P. R., Meeske, K. i Stuber, M. (2000). Posttraumatic stress symptoms and stressful life events predict the long-term adjustment of survivors of childhood cancer and their mothers. Journal of Clinical Psychology in Medical Settings, 7, 189-196.
Barakat, L. P., Kazak, A. E., Meadows, A. T., Casey, R., Meeske, K. i Stuber, M. L. (1997). Families Surviving Childhood Cancerf: A Comparison of Posttraumatic Stress Symptoms with Families of Healthy Children. Journal of Pediatric Psychology, 22, 843-859.
Bąkowska, E. i Bobrowska, H. (1989). Wybrane aspekty oceny psychologicznej chłopców chorych na hemofilię i ich rodziców, Pediatria Polska, 7/8, 92 95.
Booth‐Butterfield, M. i Trotta, M. R. (1994). Attributional patterns for expressions of love. Communication Reports, 7, 119-129.
Bowlby, J. (1958). The nature of the child’s ties to his mother. International Journal of Psychoanalysis, 39, 350-373.
Chybicka, A. i Sawicz-Birkowska, K. (2008). Onkologia i hematologia dziecięca. Warszawa: PZWL.
Compas B., Desjardins L., Vannatta K., Young-Saleme T., Rodriguez E., Dunn M., Bemis H., Snyder S., i Gerhardt C. (2014). Children and adolescents coping with cancer: self- and parent reports of coping and anxiety/depression. Health Psychology, 33(8), 8853-61.
de Chateau, P. i Wiberg, B. R. (1977). Long-term effect on mother-infant behaviour of extra contact during the first hour post partum. II. A follow-up at three months. Acta Paediatrica Scandinavica, 66, 145-151.
de Weerth, C., van Geert, P. i Hoijtink, H. (1999). Intraindividual variability in infant behavior. Developmental Psychology, 35, 1102.
Denes A., Bennett M. i Winkler K. L. (2017). Exploring the benefits of affectionate communication: implications for interpersonal acceptance–rejection theory. Journal of Family Theory and Review, 9, 491–506.
Ditzen, B., Neumann, I. D., Bodenmann, G., von Dawans, B., Turner, R. A., Ehlert, U. i Heinrichs, M. (2007). Effects of different kinds of couple interaction on cortisol and heart rate responses to stress in women. Psychoneuroendocrinology, 32, 565-574.
Eibl-Eibesfeldt, I. (1987). Miłość i nienawiść. Warszawa: PWN.
Ellis, K. (2002). Perceived parental confirmation: Development and validation of an instrument. Southern Journal of Communication, 67, 319-334.
Field, T. (1999). Preschoolers in America are touched less and are more aggressive than preschoolers in France. Early Child Development and Care, 151, 11-17.
Field, T., Grizzle, N., Scafidi, F., Abrams, S., Richardson, S., Kuhn, C. i Schanberg, S. (1996). Massage theraphy for infants of depressed mothers. Infant Behavior and Development, 19, 107-112.
Field, T., Lang, C., Yando, R. i Bendell, D. (1995). Adolescents' intimacy with parents and friends. Adolescence, 30, 133-140.
Floyd, K. (1997). Communicating affection in dyadic relationships: An assessment of behavior and expectancies. Communication Quarterly, 45, 68-80.
Floyd, K. (2001). Human affection exchange: I. Reproductive probability as a predictor of men's affection with their sons. The Journal of Men’s Studies, 10, 39-50.
Floyd, K. (2002). Human affection exchange: V. Attributes of the highly affectionate. Communication Quarterly, 50, 135–152.
Floyd, K. (2006). Human affection exchange: XII. Affectionate communication is associated with diurnal variation in salivary free cortisol. Western Journal of Communication, 70, 47-63.
Floyd, K., Hess, J. A., Miczo, L. A., Halone, K. K., Mikkelson, A. C. i Tusing, K. J. (2005). Human affection exchange: VIII. Further evidence of the benefits of expressed affection. Communication Quarterly, 53, 285-303.
Floyd, K., Mikkelson, A. C., Hesse, C. i Pauley, P. M. (2007). Affectionate writing reduces total cholesterol: Two randomized, controlled trials. Human Communication Research, 33, 119-142.
Floyd, K., Mikkelson, A. C., Tafoya, M. A., Farinelli, L., La Valley, A. G., Judd, J. i in. (2007). Human affection exchange: XIII. Affectionate communication accelerates neuroendocrine stress recovery. Health Communication, 22, 123-132.
Floyd, K. i Morman, M. T. (1998). The measurement of affectionate communication. Communication Quarterly, 46, 144–162.
Floyd, K., Pauley, P. M. i Hesse, C. (2010). State and trait affectionate communication buffer adults' stress reactions. Communication Monographs, 77, 618-636.
Floyd, K. i Riforgiate, S. (2008). Affectionate communication received from spouses predicts stress hormone levels in healthy adults. Communication Monographs, 75, 351-368.
Foley, G. V. i Whittam, E. H. (1990). Care of the child dying of cancer: Part I. CA: A Cancer Journal for Clinicians, 40, 327-354.
Freud, A (1976). Foreword. [w] A. D. Hofmann, R. D. Becker i H. P. Gabriel (red.), The hospitalized adolescent: A guide to managing the ill and injured youth. New York: Free Press.
Greszta, E. (2000a). Więź emocjonalna i sposoby jej badania. Psychologia Wychowawcza, 1, 57-66.
Greszta, E. (2000b). Poczucie więzi emocjonalnej z rodzicami u dzieci chorujących na białaczkę. Psychologia Wychowawcza, 2/3, 201-207.
Greszta E. (2001). Metoda projekcyjna w badaniu wsparcia społecznego u dzieci. Studia Psychologiczne, 1/2, 73-91.
Greszta, E. (2006). Depresja wieku dorastania: zachowania rodziców jako czynnik ochronny lub czynnik ryzyka depresji u dorastających dzieci. Warszawa: Academica Wydawnictwo SWPS.
Golfenshtein, N., Srulovici, E. i Medoff-Cooper, B. (2016). Investigating parenting stress across pediatric health conditions-a systematic review. Comprehensive Child and Adolescent Nursing, 39, 41-79.
Hall, J. A. (2010). An exploratory study of communication, gender-role conflict, and social support of parents of children treated at children's hospital. Journal of Psychosocial Oncology, 28, 511-525.
Harlow, H. F. (1958). The nature of love. American Psychologist, 13, 673.
Jaworska, I., Lubiejewski, P. i Wójtowicz, N. (2019). Formy okazywania miłości a komunikacja interpersonalna u młodych dorosłych. Kwartalnik Naukowy Fides et Ratio, 37, 95-108.
Jiménez-Iglesias, A., Moreno, C., Ramos, P. i Rivera, F. (2015). What family dimensions are important for health-related quality of life in adolescence?. Journal of Youth Studies, 18, 53-67.
Johnson, S. i Franke, S. (1997). Hug Therapy. Children and Families, 16, 8-9.
Kazak, A. E., Hocking, M. C., Ittenbach, R. F., Meadows, A. T., Hobbie, W., DeRosa, B. W., ... i Reilly, A. (2012). A revision of the intensity of treatment rating scale: classifying the intensity of pediatric cancer treatment. Pediatric Blood & Cancer, 59, 96-99.
Khoury S., Jasmin C. (1983). Prawda o raku. Warszawa: PZWL.
Kentor, R. A. i Hilliard, M. E. (2019). JPP Student Journal Club commentary: Considerations on depression, distress, and resilience in parents of children with chronic health conditions. Journal of Pediatric Psychology, 44, 150-152.
Koch-Hattem, A. (1987). Families and chronic illness. Family Therapy Collections, 22, 33-50.
Koester, L. S., Brooks, L. i Traci, M. A. (2000). Tactile contact by deaf and hearing mothers during face-to-face interactions with their infants. Journal of Deaf Studies and Deaf Education, 5, 127-139.
Lewis, R. J., Heisel, A. D., Reinhart, A. M. i Tian, Y. (2011). Trait affection and asymmetry in the anterior brain. Communication Research Reports, 28, 347-355.
Light, K. C., Grewen, K. M. i Amico, J. A. (2005). More frequent partner hugs and higher oxytocin levels are linked to lower blood pressure and heart rate in premenopausal women. Biological psychology, 69, 5-21.
Lowinger, S., Dimitrovsky, L., Strauss, H. i Mogilner, C. (1995). Maternal social and physical contact: links to early infant attachment behaviors. The Journal of Genetic Psychology, 156, 461-476.
Madan-Swain, A. i Brown, R. T. (1991). Cognitive and psychosocial sequelae for children with acute lymphocytic leukemia and their families. Clinical Psychology Review, 11, 267-294.
Manne, S. L., Du Hamel, K., Gallelli, K., Sorgen, K. i Redd, W. H. (1998). Posttraumatic stress disorder among mothers of pediatric cancer survivors: diagnosis, comorbidity, and utility of the PTSD checklist as a screening instrument. Journal of Pediatric Psychology, 23, 357-366.
Mantis, I., Mercuri, M., Stack, D. M. i Field, T. M. (2019). Depressed and non-depressed mothers’ touching during social interactions with their infants. Developmental Cognitive Neuroscience, 35, 57-65.
McAdams, T. A., Rijsdijk, F. V., Narusyte, J., Ganiban, J. M., Reiss, D., Spotts, E. i in. (2017). Associations between the parent–child relationship and adolescent self‐worth: a genetically informed study of twin parents and their adolescent children. Journal of Child Psychology and Psychiatry, 58, 46-54.
McCubbin, M., Balling, K., Possin, P., Frierdich, S. i Bryne, B. (2002). Family resiliency in childhood cancer. Family Relations, 51, 103-111.
Okado, Y., Long, A. M. i Phipps, S. (2014). Association between parent and child distress and the moderating effects of life events in families with and without a history of pediatric cancer. Journal of pediatric psychology, 39, 1049-1060.
Patenaude, A. F. i Kupst, M. J. (2005). Psychosocial functioning in pediatric cancer. Journal of Pediatric Psychology, 30, 9-27.
Pauley, P. M., Floyd, K. i Hesse, C. (2015). The stress-buffering effects of a brief dyadic interaction before an acute stressor. Health communication, 30, 646-659.
Pelcovitz, D., Goldenberg, B., Kaplan, S., Weinblatt, M., Mandel, F., Meyers, B. i Vinciguerra, V. (1996). Posttraumatic stress disorder in mothers of pediatric cancer survivors. Psychosomatics, 37, 116-126.
Rodriguez, E. M., Dunn, M. J., Zuckerman, T., Hughart, L., Vannatta, K., Gerhardt, C.A., i Compas, B. E. (2013). Mother–child communication and maternal depressive symptoms in families of children with cancer: Integrating macro and micro levels of analysis. Journal of Pediatric Psychology, 38, 732-743.
Rodriguez, E. M., Murphy, L., Vannatta, K., Gerhardt, C. A., Young-Saleme, T., Saylor, M., ... i Compas, B. E. (2015). Maternal coping and depressive symptoms as predictors of mother–child communication about a child’s cancer. Journal of Pediatric Psychology, 41, 329-339.
Rogiewicz, M. (2015). Praktyczny podręcznik psychoonkologii dzieci i nastolatków. Kraków: Medycyna Praktyczna.
Rohner, R. P. i Lansford, J. E. (2017). Deep structure of the human affectional system: Introduction to interpersonal acceptance–rejection theory. Journal of Family Theory & Review, 9, 426-440.
Rubin, Z. (1973). Love and learning theory. Contemporary Psychology, 18, 640-641.
Ryś M. (2003). Kształtowanie postaw miłości w różnych systemach rodzinnych. Laski, 6, 47-57.
Ryś, M. (2010). Miłość jako psychologiczna podstawa wspólnoty małżeńskiej. Kwartalnik Naukowy Fides et Ratio, 4, 22-30.
Ryś, M. (2016). Miłość jako psychologiczna podstawa wspólnoty małżeńskiej. Ujęcie psychologiczne, [w:] I. Grochowska i P. Mazanka (red.), Szczęśliwe małżeństwo i rodzina, Kwartalnik Naukowy Fides et Ratio wydanie specjalne, s. 57-74. Warszawa: Wydawnictwo Naukowe UKSW.
Sauer, R. (1993). Dzieci wobec cierpienia: jak rozmawiać z dziećmi o cierpieniu. Warszawa: Instytut Wydawniczy Pax.
Schrodt, P., Ledbetter, A. M. i Ohrt, J. K. (2007). Parental confirmation and affection as mediators of family communication patterns and children's mental well-being. The Journal of Family Communication, 7, 23-46.
Schwartz, G. E. i Russek, L. G. (1998). Family love and lifelong health? A challenge for clinical psychology. [w:] D. Routh i R. DeRubeis (red.), The science of clinical psychology: Accomplishments and future directions (s. 121–146). Washington, DC: American Psychological Association.
Slavin, L. A., O'Malley, J. E., Koocher, G. P. i Foster, D. J. (1982). Communication of the cancer diagnosis to pediatric patients: impact on long-term adjustment. The American Journal of Psychiatry, 139, 179-183.
Sloper, P. (2000). Predictors of distress in parents of children with cancer: A prospective study. Journal of Pediatric Psychology, 25, 79-91.
Son, H., Haase, J. i Docherty, S. L. (2019). Parent-child communication in a childhood cancer context: A literature review. Pediatric Nursing, 45, 129-141.
Sorgen, K. E. i Manne, S. L. (2002). Coping in children with cancer: Examining the goodness-of-fit hypothesis. Children's Health Care, 31, 191-207.
Stenka, K. E. i Izdebski, P. (2018). Rodzice w obliczu choroby nowotworowej dziecka. Psychiatria i Psychologia Kliniczna, 18, 306-314.Sternberg, R. J. i Grajek, S. (1984). The nature of love. Journal of Personality and Social Psychology, 47, 312-329.
Stettbacher, K. (1993). Sens cierpienia. Lecząca konfrontacja z własną duszą. Warszawa: Jacek Santorski & Co
Strauss, C. C. (1988). Social deficits of children with internalizing disorders. [w:] B. B. Lahey, A. E. Kazdin (red.), Advances in clinical child psychology, vol. 11 (s. 159-191). Boston, MA: Springer.
Stuber, M. L., Christakis, D. A., Houskamp, B. i Kazak, A. E. (1996). Posttrauma symptoms in childhood leukemia survivors and their parents. Psychosomatics, 37, 254-261.
Trzęsowska-Greszta E. (1994). Psychologiczne problemy dziecka chorującego na białaczkę. Zdrowie Psychiczne, 1-2, 147-154.
Trzęsowska-Greszta E. (1996). Poczucie więzi emocjonalnej z rodzicami u dzieci chorujących na białaczkę (niepublikowana praca doktorska). Kraków: Uniwersytet Jagielloński.
Twardosz, S., Schwartz, S., Fox, J, i Cunningham, J. L. (1979). Development and evaluation of a system to measure affectionate behavior. Behavioral Assessment, 1,177-190.
van Eys, J. (1987). Living beyond cure: transcending survival. Journal of Pediatric Hematology/Oncology, 9, 114-118.
Vetsch, J., Wakefield, C. E., Robertson, E. G., Trahair, T. N., Mateos, M. K., Grootenhuis, M., ... i Fardell, J. E. (2018). Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review. Quality of Life Research, 27, 1431-1443.
Wakefield, C., Fardell, J., Doolan, E., Aaronson, N., Jacobsen, P., Cohn, R. i King, M. (2017). Participation in psychosocial oncology and quality-of-life research: a systematic review. The Lancet Oncology, 18, 153-165.
Ward, J. D. (2000). Pediatric cancer survivors: Assessment of late effects. Nurse Practitioner, 25, 18-37.
Wendland‐Carro, J., Piccinini, C. A. i Millar, W. S. (1999). The role of an early intervention on enhancing the quality of mother‐infant interaction. Child Development, 70, 713-721.
Woolf, C., Muscara, F., Anderson, V. i McCarthy, M. (2016). Early traumatic stress responses in parents following a serious illness in their child: A systematic review. Journal of Clinical Psychology in Medical Settings, 23, 53-66.
Zazzo R. (red., 1978). Przywiązanie. Ujęcie interdyscyplinarne. Warszawa: PWN.
Zbrożek J., Rybka-Król Z. i Ochocka M. (1991). Charakterystyka postaw emocjonalnych matek dzieci z wieloletnią remisją chorób nowotworowych. Pediatria Polska, 11/12, 34- 38.
Zbrożek, J. i Traczewska, M. (1985). Wpływ środowiska rodzinnego na adaptację społeczną dzieci z wieloletnią remisją w przebiegu ostrej białaczki limfo blastycznej. Pediatria Polska, 1, 51-55.
Zdebska, S. i Armata, J. (1982). Społeczno-moralne dojrzewanie dzieci leczonych z powodu nowotworowych chorób krwi. Pediatria Polska, 57, 855-859.