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Czyżowska, N. (2018). Opieka skoncentrowana na godności jako odpowiedź na potrzeby osób u kresu życia . Kwartalnik Naukowy Fides Et Ratio, 33(1), 161-171. Pobrano z https://fidesetratio.com.pl/ojs/index.php/FetR/article/view/593
Język / Language
Słowa kluczowe
Abstrakt
People at the end of their lives struggle with such problems as depression, anxiety, hopelessness, loss of meaning and purpose or demoralization. Palliative care attempts to satisfy both the physical and mental needs of patients and the need to maintain dignity is one of the basic ones. The aim of the article is to show how people at the end of life understand the concept of dignity and present a new model: dignity –conserving care and a proposal of new psychotherapeutic intervention - Dignity Therapy, which is to improve the quality of life of terminally ill patients.
Bibliografia
Breitbart W., Rosenfeld B.D., Passik S.D. (1996), Interest in physician-assisted suicide among ambulatory HIV-infected patients, American Journal of Psychiatry, 153, p. 238-242.
Breitbart W., Rosenfeld B. D., Pessin H., Kaim M., Funesti-Esch J., Galietta M., Nelson C.J., Brescia R. (2000), Depression, Hopelessness, and Desire for Hastened Death in Terminally Ill Patients With Cancer, JAMA, 284(22), p. 2907–2911.
Chochinov H.M., Wilson K.G., Enns M., Lander S. (1998), Depression, hopelessness, and suicidal ideation in the terminally ill, Psychosomatics, 39, p. 366–370.
Chochinov H.M. (2002),Dignity-conserving care: A new model for palliative care, JAMA,287, p. 2253- 2260.
Chochinov H.M., Hack T., Hassard T., i in. (2002), Dignity in the terminally ill: A cross-sectional cohort study, Lancet, 360, p. 2026-2030.
Chochinov H.M., Hack T, McClement S., i in. (2002). Dignity in the terminally ill: An empirical model. Social Science & Medicine, 54, p. 433-443.
Chochinov H.M., Hack T., Hassard T., Kristjanson L.J., McClement S., Harlos M. (2005), Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life, Journal of Clinical Oncology, 23, p. 5520- 5525.
Geyman J. P. (1983), Dying and death of a family member, Journal of Family Practice, 17, p. 125–134.
Holland J. C., Passik S., Kash K. M., Russak S. M., Gronert M. K., Sison A., i in. (1999), The role of religious and spiritual beliefs in coping with malignant melanoma, Psychooncology, 8, p. 14–26.
Juliao M., Barbosa A., Oliveira F., Nunes B., Vaz Carneiro A. (2013), Efficacy of dignity therapy for depression and anxiety in terminally ill patients: early results of a randomized controlled trial. Palliative & Supportive Care, 11(6), p. 481–489.
Juliao M., Oliveira F., Nunes B., Vaz Carneiro A., Barbosa A. (2014), Efficacy of dignity therapy on depression and anxiety in Portuguese terminally ill patients: a phase II randomized controlled trial, Journal of Palliative Medicine,17(6), p. 688–695.
Kissane D. W.(1999), Euthanasia, dementia and ageing. Current Opinion in Psychiatry, 12(4), p. 457-461.
Kissane D. W. (2001), Demoralization: its impact on informed consent and medical care. Med J Aust, 175(10), p. 537-539.
Kissane D. W., Clarke D. M., Street A. F. (2001) Demoralization syndrome: a relevant psychiatric diagnosis for palliative care, Journal of Palliative Care, 17, p. 12–21.
Kissane D.W. (2014), Demoralization: a life-preserving diagnosis to make for the severely medically ill, Journal of Palliative Care, 30, p. 255-258.
Kolva E., Rosenfeld B., Pessin H., Breitbart W., Brescia R. (2011), Anxiety in terminally ill cancer patients, Journal of Pain Symptom Managements, 42(5), p. 691 – 701.
Madan T. N. (1992), Dying with dignity. Social Science & Medicine, 35, p. 425–432.
McClement S., Chochinov H.M., Hack T. (2007). Dignity therapy: family member perspectives, Journal of Palliative Medicine, 10(5), p. 1076–1082.
Meier D.E., Eammons C.A., Wallenstein S., i in. (1998), A national survey of physician-assisted suicide and euthanasia in the United States, The New England Journal of Medicine, 338, p. 1193-1201.
Owen C., Tennant C., Levi J., Jones M. (1992), Suicide and euthanasia: patient attitudes in the context of cancer. Psychooncology, 1, p. 79- 88.
Owen C., Tennant C., Levi J., Jones M (1994), Cancer patients' attitudes to final events in life: wish for death, attitudes to cessation of treatment, suicide and euthanasia, Psychooncology, 3, p. 1- 9.
Papuć E. (2011), Jakość życia – definicje i sposoby jej ujmowania, Current Problems of Psychiatry, 12(2), s. 141-145.
Payne S.A, Langley-Evans A., Hillier R. (1996), Perceptions of a 'good death': a comparative study of the views of hospice staff and patients, Palliative Medicine,10, p. 307–312.
Porche K., Reymond L., Callaghan J.O., Charles M. (2014), Depression in palliative care patients: a survey ofassessment and treatment practices of Australian and New Zealand palliative care specialists, Australian Health Review, 38(1), p. 44–50.
Robinson S., Kissane D.W., Brooker J., Burney S. (2014), A review of the construct of demoralization: History, definitions, and future directions for palliative care, American Journal of Hospice and Palliative Medicine, 33(1), p. 93 – 101.
Robinson S., Kissane D.W., Brooker J., i in. (2015), A systematic review of the demoralization syndrome in individuals with progressive disease and cancer: a decade of research, Journal of Pain and Symptom Management,49(3), p. 595-610.
Rodin G., Lo C., Mikulincer M., Donner A., Gagliese L., Zimmermann C. (2009), Pathways to distress: The multiple determinants of depression, hopelessness, and the desire forhastened death in metastatic cancer patients, Social Science and Medicine, 68, p. 562–569.
Rosenstein D.L. (2011), Depression and end-of-life care for patients with cancer, Dialogues Clin Neurosci, 13(1), p. 101-108.
Smith K.W., Avis N.E., Assman S.F.(1999) Distinguishing between quality of life and health status in quality of life research: a meta-analysis, Quality of Life Research, 8, p. 447-459.
Steinhauser K.E., Christakis N.A., Clipp E.C., McNeilly M., McIntyre L., Tulsky J.A. (2000), Factors considered important at the end of life by patients, family, physicians, and other care providers, JAMA, 15; 284(19), p. 2476-2482.
Steinhauser K.E., Christakis N.A., Clipp E.C., McNeilly M., Grambow S., Parker J., Tulsky J.A. (2001), Preparing for the end of life: preferences of patients, families, physicians, and other care providers., Journal of Pain and Symptom Management,22(3), p. 727-737.
Strada E. A. (2009), Grief, demoralization, and depression: Diagnostic challenges and treatment modalities, Primary Psychiatry, 16(5), p. 49-55.
Breitbart W., Rosenfeld B. D., Pessin H., Kaim M., Funesti-Esch J., Galietta M., Nelson C.J., Brescia R. (2000), Depression, Hopelessness, and Desire for Hastened Death in Terminally Ill Patients With Cancer, JAMA, 284(22), p. 2907–2911.
Chochinov H.M., Wilson K.G., Enns M., Lander S. (1998), Depression, hopelessness, and suicidal ideation in the terminally ill, Psychosomatics, 39, p. 366–370.
Chochinov H.M. (2002),Dignity-conserving care: A new model for palliative care, JAMA,287, p. 2253- 2260.
Chochinov H.M., Hack T., Hassard T., i in. (2002), Dignity in the terminally ill: A cross-sectional cohort study, Lancet, 360, p. 2026-2030.
Chochinov H.M., Hack T, McClement S., i in. (2002). Dignity in the terminally ill: An empirical model. Social Science & Medicine, 54, p. 433-443.
Chochinov H.M., Hack T., Hassard T., Kristjanson L.J., McClement S., Harlos M. (2005), Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life, Journal of Clinical Oncology, 23, p. 5520- 5525.
Geyman J. P. (1983), Dying and death of a family member, Journal of Family Practice, 17, p. 125–134.
Holland J. C., Passik S., Kash K. M., Russak S. M., Gronert M. K., Sison A., i in. (1999), The role of religious and spiritual beliefs in coping with malignant melanoma, Psychooncology, 8, p. 14–26.
Juliao M., Barbosa A., Oliveira F., Nunes B., Vaz Carneiro A. (2013), Efficacy of dignity therapy for depression and anxiety in terminally ill patients: early results of a randomized controlled trial. Palliative & Supportive Care, 11(6), p. 481–489.
Juliao M., Oliveira F., Nunes B., Vaz Carneiro A., Barbosa A. (2014), Efficacy of dignity therapy on depression and anxiety in Portuguese terminally ill patients: a phase II randomized controlled trial, Journal of Palliative Medicine,17(6), p. 688–695.
Kissane D. W.(1999), Euthanasia, dementia and ageing. Current Opinion in Psychiatry, 12(4), p. 457-461.
Kissane D. W. (2001), Demoralization: its impact on informed consent and medical care. Med J Aust, 175(10), p. 537-539.
Kissane D. W., Clarke D. M., Street A. F. (2001) Demoralization syndrome: a relevant psychiatric diagnosis for palliative care, Journal of Palliative Care, 17, p. 12–21.
Kissane D.W. (2014), Demoralization: a life-preserving diagnosis to make for the severely medically ill, Journal of Palliative Care, 30, p. 255-258.
Kolva E., Rosenfeld B., Pessin H., Breitbart W., Brescia R. (2011), Anxiety in terminally ill cancer patients, Journal of Pain Symptom Managements, 42(5), p. 691 – 701.
Madan T. N. (1992), Dying with dignity. Social Science & Medicine, 35, p. 425–432.
McClement S., Chochinov H.M., Hack T. (2007). Dignity therapy: family member perspectives, Journal of Palliative Medicine, 10(5), p. 1076–1082.
Meier D.E., Eammons C.A., Wallenstein S., i in. (1998), A national survey of physician-assisted suicide and euthanasia in the United States, The New England Journal of Medicine, 338, p. 1193-1201.
Owen C., Tennant C., Levi J., Jones M. (1992), Suicide and euthanasia: patient attitudes in the context of cancer. Psychooncology, 1, p. 79- 88.
Owen C., Tennant C., Levi J., Jones M (1994), Cancer patients' attitudes to final events in life: wish for death, attitudes to cessation of treatment, suicide and euthanasia, Psychooncology, 3, p. 1- 9.
Papuć E. (2011), Jakość życia – definicje i sposoby jej ujmowania, Current Problems of Psychiatry, 12(2), s. 141-145.
Payne S.A, Langley-Evans A., Hillier R. (1996), Perceptions of a 'good death': a comparative study of the views of hospice staff and patients, Palliative Medicine,10, p. 307–312.
Porche K., Reymond L., Callaghan J.O., Charles M. (2014), Depression in palliative care patients: a survey ofassessment and treatment practices of Australian and New Zealand palliative care specialists, Australian Health Review, 38(1), p. 44–50.
Robinson S., Kissane D.W., Brooker J., Burney S. (2014), A review of the construct of demoralization: History, definitions, and future directions for palliative care, American Journal of Hospice and Palliative Medicine, 33(1), p. 93 – 101.
Robinson S., Kissane D.W., Brooker J., i in. (2015), A systematic review of the demoralization syndrome in individuals with progressive disease and cancer: a decade of research, Journal of Pain and Symptom Management,49(3), p. 595-610.
Rodin G., Lo C., Mikulincer M., Donner A., Gagliese L., Zimmermann C. (2009), Pathways to distress: The multiple determinants of depression, hopelessness, and the desire forhastened death in metastatic cancer patients, Social Science and Medicine, 68, p. 562–569.
Rosenstein D.L. (2011), Depression and end-of-life care for patients with cancer, Dialogues Clin Neurosci, 13(1), p. 101-108.
Smith K.W., Avis N.E., Assman S.F.(1999) Distinguishing between quality of life and health status in quality of life research: a meta-analysis, Quality of Life Research, 8, p. 447-459.
Steinhauser K.E., Christakis N.A., Clipp E.C., McNeilly M., McIntyre L., Tulsky J.A. (2000), Factors considered important at the end of life by patients, family, physicians, and other care providers, JAMA, 15; 284(19), p. 2476-2482.
Steinhauser K.E., Christakis N.A., Clipp E.C., McNeilly M., Grambow S., Parker J., Tulsky J.A. (2001), Preparing for the end of life: preferences of patients, families, physicians, and other care providers., Journal of Pain and Symptom Management,22(3), p. 727-737.
Strada E. A. (2009), Grief, demoralization, and depression: Diagnostic challenges and treatment modalities, Primary Psychiatry, 16(5), p. 49-55.
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